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SHINING A LIGHT ON SARCOMA

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Schwannomatosis

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What is Schwannomatosis?

The rarest form, characterised by the development of multiple schwannomas — tumours that grow on the covering of the nerves. It typically causes pain, rather than the neurological deficits seen in NF1 and NF2.

Signs and symptoms

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Diagnosing Schwannomatosis

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Treating Schwannomatosis

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After treatment

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Recurrence

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Metastasis

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Last reviewed 10/04/2026

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What it is
Signs and symptoms
Diagnosis
Treatment
Aftercare
Recurrence
Metastasis