Our Online Community
Sarcoma is rare, and one of the hardest parts of a rare diagnosis is how isolating it can be. You may never have met anyone else with your subtype. Our community exists so that you can find people who understand — wherever you are in Ireland, and whenever you need them.
Monthly Online Support Groups
We run two online groups every month, both facilitated by an accredited psychotherapist:
Patient & Family Support Group – for anyone living with sarcoma, and for their families and carers.
Bereavement Support Group – for anyone who has lost a loved one to sarcoma.
Groups meet online, so you can join from anywhere on the island. There is no charge, no pressure to speak, and no commitment to attend every month. To join, email support@sarcoma.ie and we will send you the details and the link.
In-Person Peer Support Groups
We also hold in-person peer support groups in locations around the country, including Cork, Dublin and Limerick, giving patients and family members the chance to meet face to face over a cup of tea. Dates and venues are announced on our social media and in our newsletter.
Follow Us
Our social media channels are the fastest way to keep up with support group dates, campaigns, fundraising events and news:
- Facebook: facebook.com/sarcomacancerireland
- Instagram: instagram.com/sarcomacancerireland
- TikTok: tiktok.com/@sarcomacancerireland
- LinkedIn: linkedin.com/company/sarcoma-ireland
Our Facebook page in particular is run by patients and by the loved ones of patients, and it is where much of the day-to-day conversation in the Irish sarcoma community happens.
Our Newsletter
We publish a newsletter twice a year with service updates, patient stories, advocacy news and upcoming events. To subscribe, email support@sarcoma.ie.
A Word About Online Information
Online communities can be a lifeline, but the internet also holds a great deal of frightening and out-of-date information about sarcoma. Survival statistics in particular are often years old and rarely reflect an individual’s situation. If you read something that worries you, bring it to your medical team, or talk it through with us.